Good news, I am sitting up while typing this entry- Praise God!
Sorry, another long story (that I want to remember): Last Wed. I was talking to my boss and she said she needed to talk to me, but was afraid to do so. Earlier she had told me that even when my FMLA (family medical leave) would run at 12 weeks, my job would be safe. We were concerned that I may be off that long since I had been referred to the Mayo Clinic and it took a few months to get into see one of their neurologist. I still couldn't tolerate sitting up for more than an hour or so. Anyway, she talked with our Human Resource department and my boss had understood she didn't have a choice she had to post my position at 12 weeks. That created panic- I really like my job- especially the flexibility, something I am not sure I would find elsewhere in the nursing world. Eric and I talked and made the decision with talking with others just to drive to Rochester and go to their ER. We knew I do not have a life threatening illness, but we were desperate.
Thursday morning we took that leap of faith and headed to Rochester. We got into the ER quickly and by 10:30, we were talking to their neurologist. They gave us the recommendations on what they would do if I was their patient and spoke to one of my doctors here. Also, confirmed the diagnosis of a Spontaneous CSF leak (99% sure) and answered are many questions. We came back home and had another blood patch scheduled for Friday with my doctor here. My Mercy doctors are doing fine other than they admittedly don't see this often enough and aren't sure on what to do, so they were open to having some direction. One of the many God parts of this story is that while we were in the ER, my boss was trying to get a hold of me- she had misunderstood Human Resources and she could hold my job for me. It's amazing in the fact that we needed a push otherwise I would still be waiting for appointment and the Mayo Clinic and still be laying down most of the day.
Friday morning- Eric and I attended a life changing prayer meeting at our church. Some amazing people prayed for us and we could feel God's healing hand at work. Then I went back to have my third blood patch. Each one is getting a little more uncomfortable, but if they do the trick it is well worth it.
I rested the rest of Friday. Saturday- when I started getting up I still have some residual headache when I was up, but much better than before. Each day it seems like I can be up longer and starting to feel better every day. Seven weeks of laying around takes a tole on person- so now just trying to get stronger. Also, realizing that I need to change some things in my life and hoping and praying the changes I make will be life long!
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